To BE…..Healed

Wow, I can hardly believe the road has taken me this far.  After 38 years and a constant battle up the hill and fighting, it appears I may have reached the summit and I hardly know how to react or what to do.

I sit here on a Tuesday night, I  can see the small string of lights attached to my house, i am seated right next to the Christmas tree and its lit branches, I can hear my oldest son play Star Wars Battlefront and narrate the scenario as my youngest plays on my Nook.  Most electronics make their way to my sons’ hands before I get a chance to get used to them.  It is the cost of having boys it seems.  If it were girls, they would be in my jewelry and make up and asking to borrow my clothes…I will content myself with the onslaught of noise and boisterous play.  My pug is seated on the floor, gazing at me with forlorn eyes, knowing that she would like to lay claim to my lap, but the square typey thing I call a laptop has taken that honor.  She sighs and snorts at me, then fixes her eyes back on the floor.  Maybe, she figures, the more pathetic and uninterested she looks, the more pity I will have on her.  She is right.  An invite to her, a call of her name and I have a 20lb, fawn colored, fur child resting her head on my typey thing.  She sighs a deep moan of contentment and settles herself into the crook between me and the chair.  All is well in her world.

She has not left me alone much in the last couple of weeks.  She has been my constant companion as I make multiple trips to the bathroom, grimacing in pain and logging them for a drug test diary.  The day before Thanksgiving, I was given the news that the last set of polyps I had were stage 2 and that due to the major damage done to my gastrointestinal system many parts had been compromised, including the pancreas.  GREAT.

Back up, did this just occur?  Heavens no.  My adopted family will even tell you, that while I am prone to moments of dramatic fancy, my stomach issues have been present my whole life.  I kid you not.  There has never been a day that I have not had a stomach ache, wondered where the closest bathroom was, or how quickly I would lose what I had eaten. As a young child, there were lists and lists of items that I could not eat…never knowing if I was simply allergic to everything under the sun or my system was that sensitive.  No sugar, milk, citrus, or dark-colored pop could I ingest.  This is not to say that I did not do a fair share of sneaking contraband articles, but I paid for it dearly later that day.

When I received my full adoption file a little over a year ago, many questions were answered.  Many I will not reveal at this time, but from a physical standpoint, many murky moments were made more clear.  I was well over 6 weeks premature, and weighed less than 4 lbs at birth.  Born in a rural and predominantly Native American town, the likelihood of good prenatal care is questionable.  I was born the beginning of Sept and was released from the NICU at the end of Sept– over 20 days in intensive care.  Already narratives talked about my inability to keep formula down and their concern about what would happen when I went home surfaced.  They were right to worry.

Within the first 14 days, social services had been contacted 3 separate times by my biological family to have me removed.  When the social worker made the first visit she wrote about the confusion in the house, the lack of care I was receiving, and the total disregard family members seemed to have for my welfare.  Of great concern were the stomach issues I had already experienced and the care that I required being a premie and of low birth weight, there seemed to be either too much frantic questions or not enough attention being paid to me and the social worker was already concerned.  Too little attention paid to a 4 lb baby?  How could you pay too little attention?

After I was removed the first time, I was placed back in the hospital where it was determined that I was not being fed, had not been taking in calories, and had in fact, lost weight.  I had none to spare.  The long spiral of stomach concerns began and were exacerbated by lack of care, my biological mother never did get it together and overcome her fear of dealing with one with such stomach problems.  It seems that much of the fine-tuning of system growth that happens in the last month in utero did not take place, coupled with poor natal care, and it is a miracle I survived birth….literally.  Yet, I did.  I survived bottles of beer being fed to me so that I would stop crying, and I survived enough to be adopted into a new home before I was a year old.  For that I am thankful.  Given the track record and the narrative I have, I would not have lived much longer in that environment.  I was delivered–again.

The stomach issues have continued to plague my life ever since I can remember.  There is no consistent behavior, nothing sets it off, nothing makes it worse, and yet, everything does.  I can be going along fine, eating a wonderful meal and 20 minutes later, am miserable.  I have been tested for every allergy–none appear.  I have undergone colonoscopies and endoscopes since I was 25, I am and old hat at the game, with more barium enema and radioactive eggs consumed that I can count.  Yesterday I underwent another set of scopes and found out for the first time in years that I had a clean one.  While there is much inflammation and scarring, I had no polyps to speak of and no reason to take tissue samples.  The dr even told me that I had beat the colon cancer for the 5th time, and he has not a clue how I have done it.  Neither do I, other than the host of angels and prayers covering me in the last weeks.

Tomorrow I walk into my Dr’s office and receive a drug (or placebo) which should start to calm down the constant spasm of my intestinal system, taking some of the pressure off the pancreas.  There is great concern about this as it has thrown off all my metabolic.  There could be an end to pain, an end to the constant worry and stress over how I feel and why.  An end may be near for the feeling of punishment that I have felt my body to have undergone my entire life.  You see, I believed wholeheartedly that much of what I was experiencing was a way to punish me for my existence.  If I had been born into a different set of circumstances, I would not feel this way.  Had I been a more docile baby, more adaptable, I would not have annoyed my parents….UH DUH!!!! I did nothing wrong.  Repeat, I did nothing wrong and I am not being punished.

Tomorrow could give me the permission I have sought my whole life–permission to feel and be pain free.  I have no idea what this looks like, I have no idea how to embrace this concept, parts of me have no clue what to do.  This is a gift, a wonderful chance to experience something I do not know.  There is fear.  What do I do when there is no pain?  How do I function if there is no reason to worry and carry a secret of inner turmoil?  Even the alcoholic will tell you they would give their right arm to be done, but the fear of the unknown, no matter how enticing is almost paralyzing.  That lifestyle is all they know, this pain is what I have known for 38 years.  38 years could be over in a manner of days—it has taken this long to get here.

38 years of tears, anger, humiliation, and hurt come together in a chance at something new, and here I sit scared out of my mind.  I am terrified to walk into that DR office, terrified to take the med (or placebo), terrified to think my journey down this road may be over and a new order will replace what i have known for 38 years.  The status quo is comfortable even in its dysfunction, but it is time for a change, a shift in the continuum.  I pray for the courage to move forward, to embrace this, to rejoice.  To LIVE.  I ask from you the permission to speak freely, to express my thoughts, and the space to work through some of what this calls me into exploring.

Let’s do this?

Shalom and healing to you!

cahl.

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